Ah no in the UK they now try put you on the list before you need to go on dialysis - I had managed long term decline for almost 20 years.
I also passed on the first before I was on dialysis and passed on the second as it was a "problematic" donor - they where not sure if they where HIV +ve - the Doctors send line was "don't worry we have good drugs for HIV these days"
I just did 2 10l bags in the evening and one filler to tide me over
What was the criteria to by on the list in the UK? In the US, I was put on the list when I had a GFR of 20 but that lasted only 2 years till it progressed to dialysis which is considered when GFR falls below 15. My kidney failure is due to IgA Nephropathy so it progressed despite all my attempts.
I went on dialysis when I hit about 20-25% but I had been on the list for 3 years or so before that.
It maybe the NHS has different criteria for going on the list and it my depend on consultant and the individual - but I had been seeing the nephology team since 2000 ish
I also passed on the first before I was on dialysis and passed on the second as it was a "problematic" donor - they where not sure if they where HIV +ve - the Doctors send line was "don't worry we have good drugs for HIV these days"
I just did 2 10l bags in the evening and one filler to tide me over